Early and ongoing engagement is when people with intellectual disability are involved in planning, doing, and sharing research.
Read about how PCORI defines early and ongoing engagement.
You can find Early and Ongoing Engagement tools below, which are sorted by their stage of research (planning, doing, and sharing).
Planning Research
Agreements for Working Together
Use this template to help everyone understand their responsibilities as a member of the research team.
Download:
Ready to Use Agreements for Working Together
Agreements for Working Together Instructions
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Authorship Agreement Template: Who Should be an Author?
Use this template to help talk about responsibilities related to being an author for a project. This template should be used at the beginning of a project
Download:
Ready to Use Authorship Agreement Template
Authorship Agreement Template Instructions
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Communication Planning
Use this tool for team members to indicate how they prefer to communicate and learn. Teams can choose to use this tool as a worksheet or card sort.
- Communication Planning Worksheet (Word doc)
- Communication Planning Card sort (PowerPoint)
- Team members can sort the cards using the PowerPoint file. Or, print out the file and cut out the cards for team members to physically sort the cards.
Download:
Ready to Use Communication Planning Worksheet (Word doc)
Ready to Use Communication Planning Card Sort (PowerPoint)
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Developing a Research Question: Choosing a Research Topic—What Do We Want to Learn About?
Use this tool to develop or refine a research question.
Download:
Ready to Use Developing a Research Question
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Evaluating Interventions to Study
Use this PowerPoint presentation to facilitate a conversation about existing interventions to study or adapt. This includes evaluating evidence for the interventions, fit for the research question, and acceptability. The worksheet can be used to summarize the group conversation.
Download:
Ready to Use Evaluating Interventions to Study PowerPoint
Evaluating Interventions to Study PowerPoint Instructions
Ready to Use Evaluating Interventions to Study Feedback Template (Word doc)
Evaluating Interventions to Study Feedback Template Instructions (Word doc)
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Evaluating Outcome Measures
Use the PowerPoint presentation to facilitate a conversation evaluating measures to use in your study. This includes evaluating evidence for the measures, fit for the research question, and accessibility. The worksheet can be used to summarize the group conversation.
Download:
Ready to Use Evaluating Outcome Measures (PowerPoint)
Evaluating Outcome Measures Instructions (PowerPoint)
Ready to Use Evaluating Outcome Measures Feedback Template (Word Doc)
Evaluating Outcome Measures Word Doc Feedback Template Instructions (Word Doc)
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Letter of Support Template
Use this template to support community research partners to write a letter of support.
Download:
Ready to Use Letter of Support Template
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Meeting Planning Tips
Review these tips to design accessible meetings. Teams can talk about which of these tips will be most helpful for their members and their work.
Download:
Ready to Use Meeting Planning Tips
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
PCORI Biosketch Instructions: How to Fill out the PCORI Biosketch
Use these instructions to support community research partners to develop a biosketch, using PCORI’s format. Use the template with individuals to fill out a PCORI Biosketch. You can also use the PowerPoint presentation to help guide your team to fill out the PCORI Biosketch.
Download:
PCORI Biosketch Instructions (PowerPoint)
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Deciding who should participate in the research study (eligibility criteria)
Use this tool to talk about and decide who should be eligible for the research study.
Download:
Ready to Use Research Participant Eligibility Criteria
Research Participant Eligibility Criteria Instructions
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Doing Research
Data Analysis: Figuring out what your team learned from the information (data) you collected
Use this tool to make decisions about data analysis.
Download:
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Data Collection: Making Choices about Collecting Information to Answer Your Team’s Research Question
Use this tool to make decisions about data collection.
Download:
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Meeting agenda and notes template
Use this template to develop accessible meeting notes.
Download:
Ready to Use Meeting agenda and notes template (Word doc)
Ready to Use Meeting agenda and notes template (PowerPoint)
Meeting agenda and notes template Instructions
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Sharing Research
Dissemination Strategies: How do we want to Share About our Research Project?
Use this tool to make decisions about what types of products you want to make to share about your research. This could include journal articles, presentations, podcasts, etc.
Download:
Ready to Use Dissemination Strategies
Dissemination Strategies Instructions
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
Product Specific Authorship Agreement: Decisions about Authorship for a Sharing Product
Use this template to talk about and make decisions about who will be an author for a specific sharing product, such as a single journal article or presentation.
Download:
Ready to Use Product Specific Authorship Agreement
Product Specific Authorship Agreement Instructions
Foundational Expectations
This tool aligns with the following PCORI Foundational Expectations for Partnerships in Research:
