2025-2026 Impact Report

A Note from the Executive Director

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By the Numbers

At NCSS

  • 84 START Coordinator Certifications (Initial)
  • 41 START Coordinator Certification Renewals 
  • 261 Total Certified START Coordinators
  • 521 Total Active START Team Members
  • 26 Certified Programs
  • 33-34 Total START Programs  

Across the START Network 

  • 4,620 number of crisis responses with 85% resulting in the person remaining in their community setting 
  • 4,357 people with IDD-MH served across 33 programs in 11 states 
    • 1,320 children (30%) 
    • 3,037 adults (70%) 
  • 70% of children and 69% of adults served showed a reduction in mental health symptoms 

National Service Outcomes

Emergency Service Utilization

Line graph showing the reduction of emergency service utilization from before START to during START

Distribution of Crisis Contacts

Pie chart showing that 85% of START participants were able to maintain their community setting

Improvement in Mental Health Symptoms

According to the Aberrant Behavior Checklist (ABC).

 

Any Improvement 

Hyperactivity 

Irritability 

Lethargy 

Children (n=683) 

70% 

66% 

67% 

58% 

Adults (n=2,030) 

69% 

66% 

68% 

61% 


START Population Demographics

Age

Mean Age (min-max) 

5-74 

Mode Age 

16 

Median Age 

22 

Gender

Female 

32% 

Male 

67% 

Non-Binary/Questioning 

1% 

Prefer not to answer 

< 1% 

Other Characteristics

  • 65% live with a family (61%) or an alternative family (4%) caregiver 
  • 78% have a neurodevelopmental disorder (not including ID) 
  • 72% have a diagnosed psychiatric condition 
  • 72% have chronic medical conditions 

Race/Ethnicity 

American Indian or Alaskan Native 

1% 

Asian 

4% 

Black or African American 

17% 

Hispanic or Latino 

16% 

Middle Eastern or North African 

1% 

Native Hawaiian or Pacific Islander 

< 1% 

White 

52% 

Two or More Races/Ethnicities 

9% 

Prefer not to answer 

1% 


Headline

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START Network Expansion

START Network Expansion


Training and Professional Development

Training and Professional Development 


Presentations and Publications

Presentations and Publications