The Person Experiences Interview Survey for Adults with Intellectual and Developmental Disabilities

Micah Peace Urquilla, BA; Joan B. Beasley, PhD

The Person Experience Interview Survey1 (PEIS) for adults with IDD is a patient reported experience measure for improving the quality of mental health care experiences. 

Measuring mental health care experiences helps to improve quality, and the use of a patient reported experience measures (PREM) is recommended. The Person Experience Interview Survey was developed for adults with IDD to gather information about their mental health service experiences.

The PEIS does not require a proxy or informant and is accessible for adults with limited verbal ability. It was created and evaluated through direct collaboration with people with the lived experiences of IDD and mental health concerns.

Guidelines for using the PEIS in mental health treatment:

  • The PEIS is to be completed as a structured interview, in conversation with the service
    recipient
  • Some recipients’ access, attention, and cognitive needs may require that the interview is
    broken up and completed over several conversations
  • The PEIS can be conducted multiple times – first to establish a baseline, and follow-ups to
    assess the impact of changes to one’s care
  • The PEIS has practical tools and videos to allow clinicians to implement.

Visit the PEIS Website


Reference

  1. Kramer JM, Beasley JB, Caoili A, Kalb L, Urquilla MP, Klein AE, Poncelet J, Black S, Tessler RC. Development and content validity of the Person Experiences Interview Survey (PEIS): a measure of the mental health services experiences of people with developmental disabilities. Front Psychiatry. 2023 Nov 30; 14:1271210. doi: 10.3389/fpsyt.2023.1271210.