Documents and Tools
These tools, except for Autism table, were developed by the Developmental Disabilities Primary Care Initiative (DDPCI) (2005-2014), Surrey Place Centre, Toronto, Canada, funded by Ontario Ministry of Community and Social Services and Ontario Ministry of Health and Long-Term Care, Surrey Place Centre, and Surrey Place Centre Charitable Foundation. The DDPCI published Tools for the Primary Care of People with Developmental Disabilities to complement the Primary care of adults with developmental disabilities: Canadian consensus guidelines. All tools © 2011 Surrey Place Centre. Adapted for use in the U.S. by the Developmental Disabilities Health Care E-Toolkit Project.
The Canadian consensus guidelines have been updated and can be found here. In addition, some tools have been revised and can be found here.
This document was developed by Community Care of North Carolina (CCNC) and the Medication Work group of the Medical Health Homes for People with I/DD initiative, a project funded by the North Carolina Council on Developmental Disabilities and a partnership of The Arc of NC, Easter Seals UCP NC and Autism Society of NC.
The My Health, My Life Toolkit is a toolkit for individuals with intellectual and developmental disabilities (I/DD), their family member(s) or guardian(s) and their provider support team.
The purpose of the My Health, My Life Toolkit is to:
- Improve communication when the individual enters and leaves the hospital or caresetting; and
- Build or strengthen relationships between medical providers and the individual and his or her family member(s) or guardian(s).
Published by the Institute on Community Integration (UCEDD) and the Research and Training Center on Community Living, College of Education and Human Development, University of Minnesota • Volume 29 • Number 1 • Winter 2016
Organizations
Health Care Access Research and Developmental Disabilities
The H-CARDD program was developed to address disparities in health status and health care access faced by individuals with developmental disabilities in Ontario, Canada. Individuals with developmental disabilities often have complex health care needs, experience difficulty in accessing appropriate services, and tend to encounter health care providers with little knowledge of how to support them. The overall goal of the H-CARDD program is to monitor and improve the health and health care of Ontarians with developmental disabilities through engagement with researchers, policy makers, health care planners, clinicians, adults with developmental disabilities, and caregivers.
Mental Health and Developmental Disabilities National Training Center
The Mental Health and Developmental Disabilities (MHDD) National Training Center is a collaboration between the University Centers for Excellence in Developmental Disabilities at the University of Kentucky, University of Alaska Anchorage, and Utah State University established in 2018 through funding provided by the Administration for Community Living.
North Carolina Council on Developmental Disabilities | Medical Health Homes
This initiative works with stakeholders across the State of North Carolina to identify the needs and concerns of people with (intellectual and developmental disabilities) I/DD and their families, and gaps in the current systems of care, in order to develop recommendations that promote person centered collaborative care in the right setting at the right time.
