Early and ongoing engagement is when people with intellectual disability are involved in planning, doing, and sharing research. Read about how PCORI defines early and ongoing engagement.
You can find Early and Ongoing Engagement tools below, which are sorted by their stage of research (planning, doing, and sharing).
Planning Research
Agreements for Working Together
Use this template to help everyone understand their responsibilities as a member of the research team.
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Authorship Agreement Template: Who Should be an Author?
Use this template to help talk about responsibilities related to being an author for a project. This template should be used at the beginning of a project
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Communication Planning
Use this tool for team members to indicate how they prefer to communicate and learn. Teams can choose to use this tool as a worksheet or card sort.
- Communication Planning Worksheet
- Communication Planning Card sort
- Team members can sort the cards using the PowerPoint file. Or, print out the file and cut out the cards for team members to physically sort the cards.
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Developing a Research Question: Choosing a Research Topic—What Do We Want to Learn About?
Use this tool to develop or refine a research question.
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Evaluating Interventions to Study
Use this PowerPoint presentation to facilitate a conversation about existing interventions to study or adapt. This includes evaluating evidence for the interventions, fit for the research question, and acceptability. The worksheet can be used to summarize the group conversation.
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Ready to Use Evaluating Interventions to Study PowerPoint
Evaluating Interventions to Study PowerPoint Instructions
Evaluating Outcome Measures
Use the PowerPoint presentation to facilitate a conversation evaluating measures to use in your study. This includes evaluating evidence for the measures, fit for the research question, and accessibility. The worksheet can be used to summarize the group conversation.
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Ready to Use Evaluating Outcome Measures PowerPoint
Evaluating Outcome Measures PowerPoint Instructions
Letter of Support Template
Use this template to support community research partners to write a letter of support.
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Meeting Planning Tips
Review these tips to design accessible meetings. Teams can talk about which of these tips will be most helpful for their members and their work.
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PCORI Biosketch Instructions: How to Fill out the PCORI Biosketch
Use these instructions to support community research partners to develop a biosketch, using PCORI’s format. Use the template with individuals to fill out a PCORI Biosketch. You can also use the PowerPoint presentation to help guide your team to fill out the PCORI Biosketch.
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Deciding who should participate in the research study (eligibility criteria)
Use this tool to talk about and decide who should be eligible for the research study.
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Doing Research
Data Analysis: Figuring out what your team learned from the information (data) you collected
Use this tool to make decisions about data analysis.
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Data Collection: Making Choices about Collecting Information to Answer Your Team’s Research Question
Use this tool to make decisions about data collection.
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Sharing Research
Product Specific Authorship Agreement: Decisions about Authorship for a Sharing Product
Use this template to talk about and make decisions about who will be an author for a specific sharing product, such as a single journal article or presentation.
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