These Foundational Expectations were created by the Patient-Centered Outcomes Research Institute (PCORI). They are the main reason this toolkit exists and guide how to use its resources.
- Representative Involvement
Projects should include partners, organizations, researchers, and other team members who reflect the range of patients and communities affected by the research topic. Early and Ongoing Engagement
Projects should ensure that partners contribute early and throughout the study, including planning the study, conducting the study, and disseminating study results.Dedicated Funds for Engagement and Partner Compensation
Projects should dedicate funds to support engaging with partners and compensate partners for their time, expertise, and perspectives in a timely manner and in ways that reflect their preferences and roles.Build Capacity to Work as a Team
Projects should identify skills, strengths, and barriers to engagement and provide all team members with the information, training, and support they need to work as a team.Meaningful Inclusion of Partners in Decision Making
Projects should use engagement structures and processes that include partners in decision making throughout all phases of the project, with consideration for the project’s goals, scope, and scale.Ongoing Review and Assessment of Engagement
Projects should gather input and feedback throughout the project to identify what is working well and what could be improved, and then adjust engagement approaches as needed.
