The Person Experiences Interview Survey (PEIS) is a patient reported experience measure for people with Intellectual/developmental disabilities regarding their mental health service experiences. It was developed by a team of researchers, with direct input from self-advocates and family members. The PEIS was adapted from the Family Experiences Interview Survey (FEIS) first developed by Tessler and Gamache.
PEIS development team:
- Principal Investigator: Joan B. Beasley, University of New Hampshire
- Co-Principal Investigators: Luke Kalb, Kennedy Krieger Institute and Jessica Kramer, University of Florida
- Co-Investigators: Tawara Goode, Georgetown University, Andrea Caoili, University of New Hampshire and Micah Peace Urquilla, University of New Hampshire
- Consultant: Richard Tessler, University of Massachusetts
“This survey is the first of its kind to show that people with IDD can speak for themselves,” said Dr. Joan B. Beasley, PI.
“Our team of experts with lived experience of IDD, and of supporting people with IDD, worked hard to make sure the PEIS is accessible, so that more people with IDD can have a voice in their mental health care,” said Micah Peace Urquilla, co-investigator and member of the PEIS work group. “When we have the chance to talk about our experiences with treatment, we also get the chance to improve future experiences.”
The PEIS allows for persons with IDD to provide direct feedback about their mental health service experiences.
Watch this video to learn more about the PEIS and how to use it.
If you would like the PEIS and users guide, please complete this form.
Contact Alexander.parrishvalliere@unh.edu with any questions regarding accessing the PEIS.
The materials were developed as part of the research study “Evaluation of Telehealth Services on Mental Health Outcomes for People with Intellectual and Developmental Disabilities” funded by the Patient Centered Outcomes Research Institute (Grant #14MN50).
