New England Regional Genetics Network
This New England Regional Genetics Network program intends to improve health equity and health outcomes in individuals with genetic conditions, reduce morbidity and mortality caused by genetic conditions (including congenital and metabolic disorders); and to improve the quality of coordinated and comprehensive genetic services to children and their families. The purpose of the Regional Genetics Networks is to:
- Link medically underserved populations (based on poverty, rural geographic location, and/or populations that experience health disparities) to genetic services;
- Implement quality improvement activities to increase the connection with genetic services for the medically underserved;
- Implement evidence-based innovative models of telehealth and/or telemedicine with a focus on clinical genetics outreach; and
- Provide resources to genetic service providers, public health officials and families.
Seven Regional Genetics Networks (RGNs) and a National Coordinating Center will work together to address these goals and to evaluate the programs.
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UH7MC30778; New England Genetics Network; total award amount: 1.5 million; 100% from governmental sources. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.