Genetics Education Materials for School Success (GEMSS)


This project has been completed and these resources are no longer updated


Genetics Education Materials for School Success
Genetics Education Materials for School Success (GEMSS) is a website for parents, educators, nurses, therapists, counselors, and others featuring information that schools can use to support students with genetic conditions. The site houses a library of useful tools and tips for educational supports, dietary needs, field trips, sports, and much more.

About one in 20 children has a genetic condition, even without a prior family history. Teachers and parents can use GEMSS to better understand the needs of students who have genetic conditions. The aim of GEMSS is to make school a successful experience for all students who have genetic conditions.

Visit the GEMSS website to find information on supporting students with:

  • 22q Deletion Velocardiofacial
  • Achondroplasia
  • Aicardi Syndrome
  • Angelman Syndrome (AS)
  • Autism Spectrum Disorder (ASD)
  • Congenital Heart Defects
  • Cornelia de Lange Syndrome (CdLS)
  • Cystic Fibrosis
  • Down Syndrome
  • Ehlers-Danlos Syndrome (EDS)
  • Fetal Alcohol Spectrum Disorders (FASDs)
  • Fragile X
  • Galactosemia
  • Kabuki Syndrome
  • Klinefelter Syndrome
  • Marfan Syndrome
  • MCAD
  • MECP2 Duplication
  • Neurofibromatosis 1
  • Noonan Syndrome
  • Phenylketonuria (PKU)
  • Prader-Willi
  • Rett/Rett variant Syndrome
  • Rubinstein Taybi Syndrome
  • Sickle Cell Disease
  • Smith Magenis Syndrome
  • Sotos Syndrome
  • Tuberous Sclerosis
  • Turner Syndrome
  • Urea Cycle Disorders
  • Williams Syndrome
  • Undiagnosed Medical or Developmental Conditions

GEMSS was developed by the Education & Outreach work group within the New England Genetics Collaborative. The NEGC is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number H46MC24093; New England Genetics Collaborative; total award amount: 3 million; 100% from governmental sources. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.