New England Genetics Collaborative (NEGC)

This project was completed in May 2017

"All individuals with genetic conditions in New England have the opportunity to achieve their fullest potential."

The New England Genetics CollaborativeThe mission of the New England Genetics Collaborative (NEGC) is to promote and improve health and social well-being of those with inherited conditions through collaborations among public health professionals, private health professionals, educators, consumers and advocates in Maine, New Hampshire, Vermont, Massachusetts, Rhode Island and Connecticut. The NEGC is a partnership between the University of New Hampshire Institute on Disability and Dartmouth Hitchcock Medical Center.

The primary goal of the NEGC is to assure that individuals with genetic disorders and their families have access to quality care and appropriate genetic expertise and information in the context of a medical home that provides accessible, family-centered, continuous, comprehensive, coordinated, compassionate, and culturally effective care. The NEGC is supported by a grant with the US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau, Genetic Services Branch, and is now in its second five-year funding cycle.

Activities are organized under work groups to address the following: education and outreach; quality improvement; transition from pediatric to adult health care; health care access and financing; collaboration with Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs; and medical home.

To learn more about the New England Genetics Collaborative, visit

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number H46MC24093; New England Genetics Collaborative; total award amount: 3 million; 100% from governmental sources. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.

Areas of Emphasis: 
Age Levels: 
All Ages