Family Voices: Helping Families & Professionals Maneuver the Maze of Complex Conditions
The New England Genetics Collaborative (NEGC) and child health improvement partnerships in Maine (ME CHIP), New Hampshire (NHPIP) and Vermont (VCHIP) bring you this webinar.
Is your practice looking to link families to timely services and needed supports? Have you wondered if there is a group that can help providers help families? Family Voices (FV) and the Family to Family Health Information Center (F2F-HIC) is here for you. Family Voices and the F2F-HICs are dedicated parents committed to educating and empowering families, professionals, and communities to maneuver the maze of systems that support children with complex conditions.
This is the 6th webinar in a series entitled, "It's All About Teamwork: Incorporating Genetics and Family History into the Work of the Patient Centered Medical Home (PCMH)." View archived webinars >
Who Should Attend
Pediatric/family physicians, clinical teams, families interested in best practice should attend.
- Differentiate Family Voices, the Family-to-Family Health Information Centers (F2F-HIC) and National Center for Family and Professional Partnership (NCFPP) and how they can support families and staff in your practice.
- Learn what Family Voices state affiliates and F2F-HICs have to offer in New England.
- Understand the role of Family Voices and how their work can benefit both families and providers through the use of case examples.
- Discover benefits of partnering with Family Leaders to improve health systems for all children including CYSHCN.
About the Presenters
Tara Townsend is the Family Voices Coordinator at the RI Parent Information Network (RIPIN). Tara is also the mother of 3 children including one with an undiagnosed genetic condition. Tara is a former Special Education Teacher and has now been working for RIPIN for more than 6 years. Tara is a member of the New England Genetics Collaborative and sits on numerous work groups providing the parent perspective and advocates for families to create better outcomes.
Bonnie Thompson, Family Engagement Consultant. As a parent of a teenage daughter with hemiplegic cerebral palsy, and many other gifts, Bonnie has gained valuable experience navigating many systems of health care, public services and community supports. She is currently Commission co-Chair of the MA Catastrophic Illness and Children Relief Fund (CICRF) and participates on the System Integration Project with the Massachusetts Department of Public Health. In the past, she worked as an Information Specialist with Massachusetts Family Voices. Bonnie is committed to increasing collaborative opportunities for patients and families to partner in their own health and influence improvements in the systems that support them.
Dr. Barbara Frankowski has been a practicing pediatrician in Burlington, VT for almost 30 years, and is also very active in School Health, both in her community and at the national level, where she served as a member and Chair of the AAP Council on School Health for many years. Dr. Frankowski graduated from Johns Hopkins School of Medicine in Baltimore, MD; did her residency at Case Western Reserve University in Cleveland, OH; and received her MPH from Rochester University in Rochester, NY.